Here are some pages that I have found interesting. This site, and this group of people, were a wonderful resource for me when Katie was first diagnosed with ACC. Run by people with a ridiculous number of letters after their names, freaky smart and generous with their information.

The Abilities Expo:

For South Dakotans, here is a link to get help funding travel:

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Saying you shouldn't be unhappy because someone else has it worse is about as smart as saying you shouldn't be happy because someone else has it better.